151

It’s 151,” he said, his voice tense and perplexed. “What does that mean?”

 

I could barely hear him. I felt like I was falling down a black hole. My vision was clouding in at the edges. I couldn’t take a full breath. The bedroom was dimly lit and quiet. A large bed occupied most of the real estate, but there was a small white crib by the window and a large overstuffed white glider in the corner of the room. It would have seemed so peaceful, a mother and baby rocking quietly in the corner of a hushed room, but the reality was much harsher, a bit like the color on the walls, a yellowish beige that was a poor choice for a small room with so little natural light. A color that, finally, on the Fourth of July weekend, I painted over in a fit of insanity, stepping over piles of laundry and screaming children with old gelato containers filled with cool white paint, painting one corner, one wall, one coat at a time, while Jim looked on, smiling bemusedly, knowing to say nothing, not even to offer to help. There is no stopping me once I fixate on something. He knew that going in. 

 

That night, though, the walls were still that yellowish beige. I felt on the verge of tears, or vomit, or probably both, the weight of my sweet babe at my breast the only thing keeping me tethered to the earth. 

 

One hundred and fifty one. I had already convinced myself that she had it. She had used the bathroom six times that afternoon. She was hungry constantly. I was envisioning the drive to the hospital, the terror on her face when it was time for the first of a lifetime of shots. It was over. My life, as I knew it, was over. 

 

It was late. The girls were in bed. Jim and I had been talking in hushed whispers about our concerns, until we couldn’t bear it any longer. He crept into their room and pricked her finger while she slept without waking her, a skill we had become very adept at over the past 3 months, but instead of the bottom bunk where our sweet P slept, he reached into the top, to test O, our five year old. I was sitting in the glider, nursing a three month old Q and wondering how I could leave. Leave all of it, all of them. 

 

Being P’s pancreas had been hard and will continue to be, but with O, my willful, challenging, brilliant, sensitive six year old, it would be impossible. We already struggled to understand each other, and starting tomorrow, I imagined the six shots a day, not to mention the obsessive carb counting and blood checks, and at least a decade of being in constant struggle over what she put in her body and when, followed by a lifetime of worry and loss of control. I couldn’t do it. It was more than I could bear. 

 

“Kate,” he called to me. “Kate, what does that mean?”

 

“Nothing. It means nothing. It’s high, but not high enough to diagnose. We’ll check her fasting level in the morning. Set an alarm, so we can do it before she wakes up.” I paused. “Jim,” I said finally, “I want to run away.”

 

“I know,” he said softly. 

 

He came over and gently kissed my forehead before he headed out to walk the dog. “I’ll be right back,” he whispered. 

 

The Amex had the highest limit. There were no carseats in the black station wagon. I could finish nursing the baby to sleep, and leave the powdered formula they gave us at the hospital on the kitchen counter. He had never taken a bottle before, but he would get hungry and figure it out. I could drive. I could go north. I could go south. I could follow the coast until I felt like stopping. Jim is the better parent anyway, more patient, more empathetic, more nurturing.  I’m not really cut out for this. I'm hard and demanding. I sometimes miss the subtleties that accompany normal human emotion. I could just drive into the night, roll down the windows and crank the radio, drive until I felt like coming back, if I felt like coming back. Just walk into the night, find my flip flops by the back door, and never look back, at least, until looking back felt safe again. 

 

An insistent buzzing from my phone snapped me out of my anxiety-induced musings. P was going low. I replied quickly to a concerned text from Jim, “I’m on it.” 

 

I checked her monitor, 67 and going down. Shit. Shit. Shit. 

 

I eased the baby off my breast and down into the crib. He had been asleep for a while. My holding him was more for my comfort than his. 

 

My eyes burn in the harsh light of the kitchen, as I measure an exact half cup of milk and pour it into a cup with a straw. Back in the dark of the girls’ room, I feel my way to the lower bunk. I prop her up on my arm, her body floppy and her breath sweet. I put the straw to her lips and she drinks, almost still completely asleep, a random cup of milk in the night is her new normal. It requires no explanation.  It is certainly better than the random needle in the middle of the night that awakens her all too often. She finishes, smiles softly and cuddles into the crook of my arm and settles back into a deep sleep. O rustles in her bed above us, mumbling something about the Mariana Trench.

P begins to snore softly. I breathe her in. This is my life and I am home. 

 

The Things People Say

It's funny. I hear the same things from other parents over and over again, after this diagnosis. Please, if you have been the asker of these questions, don't feel bad. I know exactly where the question came from and I harbor no ill will.

-How did you know?

Translation: How would I know?  Click here for that answer. Awareness saves lives. 

-Did you have a history of diabetes in your family?

Translation: Please say yes, so I can go back to believing this lightening won't strike my family.

-But you can control it with diet and exercise, right?

Translation: This isn't a big deal, right? I'm really uncomfortable and would like this to not be a big deal, so we can stop talking about it now.

-You are such a good mom. She is lucky to have you.

I am a mediocre mom on my best day, but the research assures me that that is most likely good enough. I am getting by day to day with what has been put in front of me just like every other parent out there. The fact that I have some big ugly medical shit on my plate doesn't make me a good mom. It does make me more tired than you, but that is the only race I am winning. If I know anything, I know I am lucky to have her.

And the inevitable, 

-I could never give my kid a shot like that.

Yes, you could. You all could. I promise you, you could and you would, without missing a beat. In the face of death, needles are no big thing.

Less common, but still more frequent than I would like are:

-Oh, I have a second cousin/friend of a friend/third uncle twice removed who died/went blind/lost a limb from that.

This is a tough one, especially in front of the kids, especially in front of O, who hears and absorbs everything. 

-My cat had diabetes and my insurance wouldn't even cover her insulin.

This is a real true thing someone complained to me about, recently. I had a very hard time controlling my face.

and

-At least it isn't something really bad, like cancer.

No. Fucking. Comment.

I try to answer the questions as honestly and as openly as I can, putting aside my own reaction to them and trying to provide information while recognizing where the other person is coming from. I'm am striving to be genuine in my life, to ask for help when I need it, to say out loud when things are hard, and a lot is hard right now.

I get it. It is weird and hard and awkward to just let these big scary words like DKA, coma, seizures, amputations, blindness, and hospital just hang out there, heavy in the air. It is hard to know what to say. I guess, I'd just like to give everyone permission to be quiet, to hear the hard things and not feel the need to fill the silence. If you must speak, I am quite fond of the poetry in the phrase, "Shit man, that fucking sucks."

 

 

Motherhood: the Sisterhood

I've had a whirlwind month. Sitting in the quiet this evening and reflecting on the past few months, it struck me.  I currently have the deepest and most meaningful friendships with women that I have ever had in my life.

 Being a mother has made me a part of a sisterhood that runs deeper than I could have ever imagined. They come from different backgrounds. We have found each other through different avenues. We have different aged kids. We are parenting alone or in partnerships. We are parenting our biological children, our adopted children, our step children, the children that life has brought us, but we are all mothers. There is a rhythm to the conversations I have with my sisters, an easy back and forth. Sometimes we are solving problems, sharing answers. Sometimes we are just hearing each other, hearing the joy or the pain or the rage, just loving each other and saying, with our love, you are enough. Your presences, and your flaws and your mistakes, and your love are enough. Advice about carseats, bags of hand-me-down maternity clothes, a shoulder to cry on,  a name to put on the emergency contact line of school paperwork, a cup of coffee at the park on the day you needed it most, these women shape my day-to-day life in a way I never expected.

Thank you is insufficient, but for now it will have to do.